Space 03

The case for change has already been made.
Now we're up to seeing an actual reform agenda.

With our collective shared lived experience, and the patterns we see, we propose a series of reforms. These reforms are deliberately systemic in nature, aimed to achieve systemic change. They are grounded in the recommendations from past inquiries, reports, and research findings.

Follow @helenswayau
4 Reform priorities
4 Federal responsibilities
2 State responsibilities
Supporters so far NCCD accountability Funding follows the child Teacher & principal capability Independent complaints body

This backs all four priorities at once. If you’d rather support them individually, use the “I support this reform” button on each priority below.

Four priorities — each explained in full further down

Here’s what we’re calling for, at a glance. Select any priority to jump straight to the full detail below.

01NCCD accountability & parent/student voicePut parent and student feedback into how schools are held accountable.See the detail ↓ 02Funding follows the childWhen school can’t meet the need, funding should follow the child to home or distance education.See the detail ↓ 03Teacher & principal capabilityLift the knowledge and capability of teachers and principals to support neurodivergent learners.See the detail ↓ 04An independent complaints bodyA complaints body independent of the department itself.See the detail ↓

We are asking for action that is strategic, with systemic and structural solutions to systemic and structural barriers.

Over many years and multiple inquiries, the same findings keep emerging: supporting neurodivergent learners needs a raft of changes. These changes need to be properly funded, but they also need to be properly managed with the goal of ongoing quality improvement.

We can't build Rome in a night, but we can start with setting the best structures, systems and funding models to get there.

Our reform agenda has been developed to include the needs of the ecosystem supporting neurodivergent learners — the learner, and also the parent/caregiver, the teacher in the classroom, the therapist. This group is currently plugging so many holes, and we believe that by implementing these reforms, not only will neurodivergent learners be better supported, but the unintended impacts (some of which are hugely expensive, both in dollar terms and in health and wellbeing terms) on all of us in the ecosystem will be reduced. We all matter.

These reforms have already been called for

Where each of our four priorities appears across the inquiries, audits and reviews — each one linked in full on our Resources page.

Reform priorities mapped to the reports and inquiries that support them
Reform priority Report 52 NSW · 2024 Royal Commission 2023 Report 37 NSW · 2017 Auditor-General Supporting students · 2024 Auditor-General Alt. settings · 2025 DSE Review Cth · 2020
01NCCD accountability & parent/student voice Yes Yes Yes Yes No No
02Funding follows the child, incl. to home-schooling Yes Yes No No Yes No
03Increase in knowledge & capability of teachers & principals Yes Yes Yes Yes No Yes
04Independent complaints body Yes Yes Yes No No No
Called for / evidenced in this report Not a focus of this report

Advocacy groups calling for these

Cross-disability and condition-specific advocacy organisations campaigning for the same reforms — grouped as on our Resources page.

Reform priorities mapped to the advocacy groups that call for them
Reform priority Family Advocacy NSW parent advocacy ACIE Inclusive-ed coalition All Means All Inclusive-ed alliance CYDA National peak body ACYP NSW children’s advocate ADHD Australia ADHD advocacy AUSPELD Dyslexia & learning Code REaD Dyslexia advocacy Square Peg Round Whole Neurodivergent advocacy Reframing Autism Autistic-led Aspect Autism Spectrum Aust. PAAA ADHD parent advocacy
01NCCD accountability & parent/student voice Yes Yes No Yes Yes Yes Yes Yes No No No No
02Funding follows the child, incl. to home-schooling Yes Yes Yes No No No No No No No No No
03Increase in knowledge & capability of teachers & principals Yes Yes Yes Yes Yes Yes Yes Yes Yes Yes Yes Yes
04Independent complaints body Yes No Yes Yes No No No No No No No No
Actively advocates for this reform Not a stated focus

The call for an independent complaints body is carried by advocacy organisations as well as the formal inquiries: All Means All seeks an independent tribunal or commission with 'own motion' powers, and CYDA and Family Advocacy call for independent complaints and oversight; beyond the columns above, Queensland Advocacy for Inclusion wants a body able to issue binding decisions and SAASSO has campaigned since 2009 for an independent Education Ombudsman for all students (both carried via the Priority 4 links, and the model already exists federally in the National Student Ombudsman). The condition-specific groups — ADHD Australia, AUSPELD, Code REaD and PAAA — focus most on early identification and teacher capability.

Professional & therapy bodies calling for these

Professional associations and allied-health bodies — grouped as on our Resources page.

Reform priorities mapped to the professional and therapy bodies that call for them
Reform priority AADPA ADHD professional Speech Pathology Aust. Professional body AASE Special education Learning Difficulties Aust. Professional
01NCCD accountability & parent/student voice Yes No No No
02Funding follows the child, incl. to home-schooling No No No No
03Increase in knowledge & capability of teachers & principals Yes Yes Yes Yes
04Independent complaints body No No No No
Actively advocates for this reform Not a stated focus

Research & academic bodies calling for these

Research centres and evidence bodies whose guidance backs these reforms — grouped as on our Resources page.

Reform priorities mapped to the research and academic bodies that call for them
Reform priority Centre for Inclusive Ed QUT · research Autism CRC Autism research OTARC La Trobe · research
01NCCD accountability & parent/student voice Yes No No
02Funding follows the child, incl. to home-schooling No No No
03Increase in knowledge & capability of teachers & principals Yes Yes Yes
04Independent complaints body No No No
Actively advocates for this reform Not a stated focus

These research and evidence bodies produce the evidence-based guidance behind Priority 3. Australia’s national education evidence body, the Australian Education Research Organisation (AERO), provides further supporting evidence — including its 2026 review of teaching practices for Autistic students and students with ADHD — cited in our MP evidence briefs.

The national picture, in the latest data

These reforms are not abstract. The most recent national snapshot of children and young people with disability shows how far the current system falls short — and why each of our four priorities matters. Every figure below is drawn from one source, tagged to the priority it speaks to.

27%

of school students received an adjustment for disability in 2025 — about 1.1 million — yet no independent check confirms the funded support actually reaches them. (ACARA, 2025)

Priority 1 · Accountability
35% → 54%

the share of home-schooled students with disability climbed from about 35% (2019) to an estimated 54% (2024) — but the funding and support don’t follow them. (Audit Office of NSW, 2025)

Priority 2 · Funding
35%

of families believe teachers and support staff have adequate training to support their child; just 42% rate classroom teachers’ knowledge of ADHD support as good or excellent. (CYDA, 2026; PAAA, 2018)

Priority 3 · Capability
2%

of parents have ever lodged a formal discrimination-in-education complaint — not because problems are rare, but because there is nowhere independent to turn.

Priority 4 · Oversight

home-schooling registrations in NSW more than doubled between 2019 and 2024 — a fast-growing exodus of families leaving a system that isn’t meeting their child’s needs. (Audit Office of NSW, 2025)

Priority 2 · Funding
73% → 62%

the share of students attending 90% or more of the time fell from 73.1% (2019) to 61.6% (2023); students with disability and neurodivergent students are the most affected. (AERO, 2025)

All four priorities

Source: Children and Young People with Disability Australia (CYDA), Snapshot of children and young people with disability in Australia — Key statistics report (March 2026), which brings together ABS, AIHW, ACARA and CYDA survey data. See the report on our Resources page →

What we are calling for.

Each priority is grounded in documented evidence. Each has already been recommended. All four are required together — partial reform in one area without the others will not produce the system change neurodivergent learners need.

Include parent and student feedback in NCCD accountability measures

Recent accountability changes are good, but our input as recipients is critical information

supporters

For many neurodivergent learners, their needs are considered significant enough to receive what the system calls Disability Funding. This is provided by the Federal Government and delivered to state education bodies — public, Catholic and Independent schools.

The NSW Department of Education defines disability under the broad, functional umbrella of whether a condition requires reasonable adjustments for the student to access and participate in education on the same basis as their peers. A formal medical diagnosis is not always required; a student's needs can be "imputed" by the school based on observations and functional impact.

The Nationally Consistent Collection of Data on School Students with Disability (NCCD) determines how disability support funding is allocated to Australian schools. Schools self-report the level of adjustment they are providing to students with disability — and the funding they receive is based on that self-reporting.

The NCCD framework already requires schools to hold evidence that supports are needed and have been provided — including evidence of consultation with parents and carers — and the Australian Government has begun recovering funding from schools that cannot substantiate their claims. We believe this focus on accountability is positive — but it does not go far enough. Auditors assess a school's own documentation; nothing requires independent evidence from parents or students. We call for systems that enable parents and students to confirm or refute the following:

  • meaningful consultation has occurred
  • that supports have been consultatively reviewed and adjusted in a meaningful and consistent way

We believe both parent and student voice must be included in any audit review.

“National data does not reflect rates of enrolment refusal, shortened school days, modified timetables, withdrawal from activities, or informal exclusions – even though this is commonly reported by families and highlighted in CYDA and Disability Royal Commission evidence.”
Children and Young People with Disability Australia (CYDA), Snapshot of children and young people with disability in Australia — Key statistics report (2026), p.33. The official numbers miss what families see — which is exactly why parent and student voice has to be part of the check. See it in our resource library →

The current problem

  • Schools self-report with no independent verification from families or students
  • Audits assess compliance but don't require parent or student confirmation
  • The NCCD asks schools to document consultation with parents — but it's the school's own record (parental consent isn't required), with no independent verification
  • No mechanism for families to challenge what has been reported
  • Audits assess compliance with documentation — but documentation isn't accountability. A school can still write "parent not available" or "consultation not practical at this time" and meet the rule.
  • "Telling" parents is not "consulting". There needs to be a way of demonstrating that true consultation took place — and parents and students are that way.

What we're calling for

  • Parent and student voice included as a required component of NCCD audit reviews
  • Evidence of meaningful consultation — not just school-documented records
  • Confirmation that agreed accommodations are in place and being consistently applied
  • A process for families to formally contribute to compliance assessments

Jurisdiction

✅ Federal ○ State

NCCD funding is administered by the Federal Government.

supporters

When All Else Fails, Funding Follows the Child — to Home-School or Distance Education

What happens to disability funding when the system has failed a child and they can no longer attend?

supporters

A parent choosing to home-school or enrol their child in distance education is, in almost every case, a last resort — not a lifestyle choice. It happens when the school environment has proved unable to meet their child's needs: through ongoing inability to provide supports, through a student being unable to cope psychologically in the school environment, or sometimes through a system that has effectively pushed them out.

Their child still has a right to an education. The need has not gone away. But at the moment, when a family makes this call, the disability funding stops — and all responsibility transfers to the parents, with no resources to meet it. Parents are left to pick up the pieces the system dropped, entirely at their own expense.

We believe that when a student moves to distance education or home schooling as a direct result of the school system's inability to meet their needs, the disability funding should follow them to the parent. Eligibility criteria are entirely workable — both parents and schools will have documentation that could support an application.

“There is strong evidence that students with disabilities, additional learning needs or specific learning disabilities are more likely to be absent than those without.”
Australian Education Research Organisation (AERO), Barriers to school attendance and reasons for student absence (2025), p.6. When a school cannot meet a neurodivergent student’s needs, absence — and often departure — follows; the funding should follow the child too. See it in our resource library →

The current problem

  • When a child moves to home schooling or distance education, disability funding stops entirely
  • All responsibility transfers to parents — with no funding to meet it
  • The decision to home-school is rarely a choice; it is frequently a consequence of system inability
  • The government effectively saves money when the system fails a child badly enough that they leave it

What we're calling for

  • Disability funding that follows the child when they move to distance education or home schooling due to system inability
  • An eligibility framework — based on existing documentation from parents and schools — to determine access
  • Recognition that home schooling as a last resort is not a cost saving; it is a cost shift onto families
  • The child's right to education does not end when the school fails them

Jurisdiction

✅ Federal ○ State

Disability support funding is a Federal Government responsibility.

supporters

Increase in Both Knowledge and Capability of Teachers & Principals About Supporting Neurodivergent Learners

Supporting neurodivergent learners is not the responsibility of one person. It requires shared knowledge, accountability, and a commitment to continuous improvement at every level.

supporters

Schools are environments, not just classrooms. Neurodivergent learners need whole-of-school support — across the physical environment, the social environment, where executive functioning skills are needed, through transitions, in learning and assessment activities, in sport, assemblies, carnivals and more. It takes a whole-of-school approach to providing this.

“Parents overwhelmingly (95%) thought teachers and key staff needed professional development and training to better understand and support students with ADHD.”
“Only around one in three families believed teachers and support staff had adequate training to support their child (35%).”
Top: Parents for ADHD Advocacy Australia, Parent & carer experiences of ADHD in Australian schools: Critical gaps (2018), p.8. Bottom: Children and Young People with Disability Australia (CYDA), Snapshot of children and young people with disability in Australia (2026), p.29. The people closest to these classrooms agree teachers need more knowledge. Critical gaps · CYDA Snapshot

Part 1

Substantive Neurodivergence Learning in Teacher Training

Most Australian teachers enter classrooms with little to no formal training in neurodivergence. What exists is often optional, surface-level, or focused on a single condition rather than the spectrum of neurodivergent learning profiles a teacher will encounter across their career. A child's experience of school should not depend on whether they happen to be assigned to a teacher who sought out this knowledge on their own initiative. We are calling for a substantive, mandatory increase in neurodivergence learning within initial teacher education programs.

Part 2

Mandatory, Annual Professional Development — Individual and Whole of School

Initial training is not enough. Knowledge about neurodivergence is evolving, and the needs within any school community change year to year. We are calling for mandatory annual professional development on supporting neurodivergent learners — required at the individual teacher level and at the whole-of-school level. And it has to be substantial: not a one-off box to tick, and not a policy that merely makes training available, but robust, sustained learning that actually changes classroom practice.

Part 3

Whole of School Continuous Improvement Reporting

Individual effort is not the same as systemic improvement. We are calling for whole-of-school continuous improvement reporting requirements that make each school accountable for how it is progressing in its ability to support neurodivergent learners — not just whether policies exist, but whether outcomes are improving.

The current problem

  • Neurodivergence training is largely optional in initial teacher education
  • Professional development is inconsistent, school-dependent, and often one-off
  • A child's experience depends on which teacher they get
  • There is no whole-of-school accountability for improving outcomes for neurodivergent learners

What we're calling for

  • Mandatory, substantive neurodivergence content in all initial teacher education programs
  • Mandatory annual PD for individual teachers and whole-of-school teams — robust and sustained, not one-off, and going beyond simply “making it available”
  • Whole-of-school continuous improvement reporting on outcomes for neurodivergent learners

Jurisdiction

✅ Federal ✅ State

Federal: University initial teacher education is regulated federally. State: Ongoing professional development and Continuous Improvement Reporting are state responsibilities.

supporters

An Independent Complaints Body

Create a complaints pathway with real investigatory power and real consequences

supporters

In NSW, a parent can currently turn to the Human Rights Commission, Anti-Discrimination NSW, or the NSW Ombudsman — the last of which covers public schools only, and only in relation to how a complaint is managed, not the substance of the complaint itself. There are also dedicated offices for children and young people — the NSW Advocate for Children and Young People and, nationally, the Children's Commissioner — but by design these are systemic advocates. Their statutory role is to speak up on children's issues in general; they are directed to focus on systemic matters and refer individual concerns elsewhere, not to take, investigate or resolve one family's dispute with a school.

None of these bodies combine what a family in dispute actually needs: expertise in neurodivergence and education, the authority to investigate the substance of the decision, and the power to compel a school to change. The children's commissioners are limited to systemic advocacy; the discrimination bodies can only conciliate a complaint that can be framed as discrimination; and the Ombudsman can look at process, not the appropriateness of the support. We believe the situation is similar across all Australian jurisdictions.

This is not only our view. When the NSW Auditor-General examined the Department of Education's complaint handling in 2024, it found that students with disability and their families “may be reluctant to make complaints about their school, to their principal, perceiving a conflict of interest and risk of negative consequences,” and that the Department “does not have oversight of the number, type or trends in complaints arising at the school level.” The same audit pointed to the Disability Royal Commission's call for complaints handling that operates “at arm's length from schools” — a recommendation all governments accepted in principle in July 2024. The audit also directed the Department to enhance its support to families to resolve conflicting views “in a timely manner,” and set January 2026 as the date for delivery; six months past that deadline, families still have no independent avenue. (NSW Auditor-General, Supporting students with disability, 2024)

The consequence is that families who have the persistence, the knowledge, and the resources to navigate a complex and discouraging system might eventually get somewhere. Families who don't — and they are the majority — absorb it quietly, because there is nowhere else to go. What would change this is an independent complaints function with genuine independence, investigatory authority, and the power to mandate outcomes. Whether that is a brand-new body or an existing office given the mandate and powers matters far less than the powers themselves — expertise in neurodivergence and education can be built or brought in; the authority to investigate and to compel change is the part that has to be legislated.

“Complaints are useless as education department does not follow them up. There is no accountability by schools or teachers who are breaking disability discrimination law.”
A parent, quoted in Parents for ADHD Advocacy Australia, Parent & carer experiences of ADHD in Australian schools: Critical gaps (2018), p.15. In the same survey, just 2% of parents had ever lodged a discrimination-in-education complaint. See it in our resource library →

The current problem

  • Complaints are handled by the institution being complained about
  • No independent avenue with investigatory powers exists for school disputes
  • Children's commissioners can advocate on systemic issues but cannot resolve individual cases
  • Outcomes are rarely binding, and the process is inaccessible to most families

What we're calling for

  • A genuinely independent complaints function — a new body, or an existing office given the mandate and powers — separate from education departments
  • Investigatory powers and the authority to mandate outcomes (expertise in neurodivergence and education can be built or brought in)
  • An accessible, low-barrier process for families
  • Transparent reporting on complaint outcomes by school and system

Jurisdiction

✅ Federal ✅ State

Complaints and accountability mechanisms span both federal and state jurisdictions — both levels of government need to act.

🏛️ The model already exists

An independent education complaints body is not a radical or untested idea. One already operates federally for university students, and another already operates in a state for schools. What's missing is a body with real power for school students, nationally.

Federal · all higher-ed students

National Student Ombudsman

Opened February 2025 as an independent national complaints body for university and higher-education students, with powers to investigate and make recommendations. Proof the Commonwealth can stand up an independent student complaints body — it just doesn't yet cover schools. Learn more →

State · government schools

Victoria — Independent Office for School Dispute Resolution

Running since 2017, this independent office uses external dispute-resolution experts to review complex, deadlocked complaints in Victorian government schools — separate from the department itself. A working state-level template. Learn more →

The gap is clear: university students have an independent umpire and one state's school families do too — but most school students, and their families, still have no independent avenue with the expertise and power to resolve a dispute. Whether we close that gap with a new body or by empowering an existing office, the missing pieces are the same: expertise and real power. That's what this reform delivers.

🤝 A natural ally for this change: The state and national Children's and Young People's Commissioners can't resolve individual disputes — but their whole mandate is to advance children's rights at a systems level. That makes them a natural partner to campaign with for an independent, expert, empowered complaints avenue, and we'd welcome working alongside them to make it happen.

supporters

✊ Endorse the Reform Agenda

Tick the reforms you want to see implemented and add your voice to the count — you can endorse all four or just the ones most relevant to you. Prefer to support them individually? Use the “I support this reform” button on each priority above. Whatever you tick here is recorded as the reforms you support.

Total
endorsements
Thank you — your endorsement has been counted.

The reform agenda has the most impact when the community is behind it.

These priorities need the weight of a collective, organised community voice to move from recommendation to reality. Every person who endorses the agenda, shares it in their network, and adds their shared lived experience to the evidence base makes that voice stronger.

You don't need to be an expert in policy to play a role here. You need to have lived this — or cared about someone who has.

Add your data

Add an anonymous data point to the tracker — the collective evidence that shows these reforms are needed.

Add your data →

Contribute ideas

If you have ideas for how these reforms could be implemented or what they should look like in practice, bring them to the Ideation space.

Go to Innovations →

Add your data

The tracker builds the quantitative picture. Your data point — wherever you are in Australia — adds to the pattern.

Go to the Tracker →

Connect decision-makers

If you know a policymaker, board member, or parliamentarian who is genuinely ready to act, we want to connect with them.

Get in touch →

Stay informed

Get updates when the reform agenda moves forward, when new evidence lands, and when there are ways to act.

✓ You're subscribed. No spam, ever.

By subscribing you agree to receive Helen's Way advocacy updates and the community newsletter. Your email is processed via Formspree (USA) and used only to send you the newsletter — never sold or shared. To unsubscribe, email hello@helensway.au any time — every email will include an unsubscribe link once we send via a newsletter platform. Privacy Policy

Is there a reform we've missed?

Our reform agenda has been shaped by shared lived experience, research, and past inquiries — but we know there's more. If there's a systemic barrier or structural gap you believe belongs here, leave your details and we'll email you to talk it through. We read every suggestion.

Thank you — we'll be in touch by email.